--An Orphan No More--

Pages

Tuesday, April 19, 2011

So many updates...so little time...

I have intended to update this blog about 101 times since my last post, but "something" always comes up. I know - excuses, excuses.....

First off, Everlyn was evaluated by our school district and "meets criteria for services" under the umbrella of "developmental delay." Super! We had her IEP meeting and she actually started in their preschool program the very next day! I was scrambling around like a crazy person that evening trying to get all of her school supplies. She is in a class of 20 children - half have some form of "special need" and half are "typical peers." Our district is inclusive at all age levels.... Everlyn LOVES school. She gets PT once a week, OT twice a week and ST twice a week. She has done very very well adjusting to her new school routine. She goes 4 afternoons per week for 3 hours each day. We applied to have Elliston enrolled beginning in the Fall as a "typical peer" and he was accepted into the program! So, next school year both of our 3 year olds will be in preschool 4 afternoons a week. YAY! :o)

Everlyn has been to see several more doctors since we have settled into our new home in Nashville. She saw her new pediatrician who ordered a repeat thyroid panel and started her on Zantac for some reflux.... Thyroid results came back EVER SO SLIGHTLY elevated....normal is less than 5.0 and hers was 5.1. We will have it repeated in a few months. She also went to see an audiologist to check her hearing. We had no concerns about her hearing, but the pediatrician wanted to get a baseline for hearing function. Children with Down syndrome can have decreased hearing due to several different factors. Everlyn passed with flying colors! We will return in a year just to check on her sweet little ears. She also saw the pediatric ophthalmologist. About 50-60% of children with Down syndrome will need glasses at some point in their childhood. She also passed this exam with flying colors! He did mention she had a very very slight astigmatism, but nothing he would correct at this point. He also gave us some drops to use for her intermittent "goopy eyes"....not pink eye....just goop. :o) She does not have to go back to see him until she starts Kindergarten! She also had her first visit to the Down Syndrome Center at Vanderbilt Children's Hospital. The developmental pediatrician we saw there was great and was pretty smitten with our Princess. We will return there in about 6 months just to monitor her development, etc. Last, we saw a pediatric nurse practitioner in the Peds GI clinic at Vanderbilt. She also mentioned how cute our sweet girl is...of COURSE she is! :o) Her first question was "Does she have mosaic Down syndrome?" Ha! This sweet girl has everyone fooled! The PNP changed her Zantac liquid to Prevacid solu-tabs (YAY!) and gave us Lactulose for issues....at the other end. :o)

So, as you can see, she has been a very busy little girl but has settled in amazingly well. If she wasn't (essentially) non-verbal, I would not consider her "special needs".....she is often my easiest child! LOL! She just goes with the flow....and I appreciate that. We can't wait to see how she blossoms in the coming months/years.

I know you want pictures....but I need to download TONS off of my camera. I will post some soon...I promise.

In other news, I am now 23 weeks pregnant with #6. We found out it's a BOY (of course! LOL)...so much for adopting a little girl to add some estrogen to this testosterone zone! We are excited to meet him in early August. Everlyn doesn't have a clue! It will be interesting to see what she thinks of a new baby in the house. We had some indications several weeks ago that he might have DS like his big sister, but an amnio revealed that he has 46 chromosomes...not 47.

So, life in general has been busy. I started working full-time in January as a nurse on the Child/Adolescent psych unit at Vanderbilt. Then in March, I moved into an administrative RN position on nights. Basically, I am the "house supervisor" for night shift. Always interesting.... We are still settling into our new home...I feel like I may never feel "settled." Working full-time and five kids don't allow for much unpacking, organizing, etc. Hoping my nesting instinct kicks in soon...and the kids cooperate! :o) The kids are loving school, making friends and doing great in their new environment.

That's our "update" in a nutshell. I will try to post pics soon!

4 comments:

The Annessa Family said...

WHEW! How do you do it girl?!?!?!

Brooke Annessa
www.theannessafamily.blogspot.com

ouradoptionjourneywithBryceVanya said...

Glad to hear all is well...I keep saying the same thing to update my blog but then I get tied up with something else. Ironically enough, I just took administrative supervisor at my hospital too. Going back to 3-12hour shifts! Can't wait to be more of mommy. We really hope to see you guys soon.We have great friends with a cabin up in TN so hopefully a trip early fall.
Keep in touch. Bryce sends kisses to his Everlyn. XOXOXOXO the Baumanns

Kim said...

I don't know if you'll get this comment since it looks like you should have your hands even more full by now (congrats!), but I wanted to write anyway. I am Leeza's mom, originally known as 'Grace' on RR. We first saw a picture of her on the Room For More blog, along with your 'Cordelia.' I spent an awful lot of time looking at their 2 pictures, knowing we were supposed to do something about one of them and praying God was going to show us which child was ours and what to do about it. Leeza has been home 10 months now. I smiled when I saw your court date...that's our 'our whole family is finally together' date!
This has been an incredibly hard year for our family, our transition to 4 kids has not gone as smoothly as some seem to, but it's been good and it is wonderful to see how God brought both these little girls home. I pray that He is giving you strength as you welcome your next baby home and thank you for all the beautiful pictures of Everlyn.
Love, Kim

Smilen Champ said...

Hi
My name is Jenna and I came across your site. Your daughter is beautiful and has a pretty smile. She is a sweetie. She is an inspirational hero. I was born with a rare life threatening disease and developmental delays. I love it when people sign my guestbook. www.miraclechamp.webs.com

Post a Comment

We love your comments! Your prayers and support mean the world to us!